We finally found a cheap snowsuit for Hadley on Ebay so she got her first snow experience of the year last wkd! We did some sledding last wkd and the girls loved it! :)
Tuesday, December 23, 2008
SNOW, SNOW, SNOW....
I can't believe how much snow we've already gotten!!!! It can be fun, but it can be a lot of work. Bundling the kids everytime to go outside, then putting everything away, and on top of it... vacumming the salt and wiping the snow that everybody tracks in everytime the step out the door! Keeps me busy... thats for sure! :) BUT its all worth it to see how much the girls love the snow! Every time Mia gets out the door she's tramping through the snow... boots or no boots! :)
We finally found a cheap snowsuit for Hadley on Ebay so she got her first snow experience of the year last wkd! We did some sledding last wkd and the girls loved it! :)
We finally found a cheap snowsuit for Hadley on Ebay so she got her first snow experience of the year last wkd! We did some sledding last wkd and the girls loved it! :)
Tuesday, December 16, 2008
Hot Cocoa for two
I don't know what it is lately, but my prayer life has been at a stand still! I don't like it when I can't communicate with God! He's my creator... how can I not communicate with him!? I feel so disconnected with him when I can't talk to him! When I try talking to him, my mind immediately wanders onto something I have to do, or something I want to get done... Or if I talk to him, I feel as if my words are bouncing off the walls right back to me... I can't focus whatsoever!
It's not a good feeling and I want to include My Father in ever second of my day. Lets face it, He created us and sacrificed His one and only son so we could live eternally with him... thats the least I could do!
So, I've had enough! I had to break the ice! I set up a hot cocoa date for me and My Lord and I talked to him from across the table. At times I felt silly talking to an empty cup, but it really helped me to visualize my Father listening to me and hearing my words!
Thank you Father for not giving up on me when I don't remember to include in ever minute of my day! Thank you for understanding the lack of focus of a young mom's mind! Thank you for understanding me individually and knowing my heart when I can't seem to communicate with you! And thank you Father for having Grace upon me!
Sunday, December 14, 2008
A bit of a scare!
Last wk was not a very good wk for us! To sum up the last few wks, Hadley has had A LOT of diarrhea, bad butt rashes, has been getting over a very bad cold, and is getting 6 new teeth popping through her gums.... We assumed the diarrhea was from the teething....
Anyways, last wk Wed. Andy and I slipped out to do some Christmas shopping and left the girls with my parents. At this point Hadley has been having a mild fever for 1 1/2 days now again we assumed it was teething. Wed. night we got a call from my parents saying Hadley was just horrible and we should come back. We came right back and took her temperature. It was 104.4. Andy called the nurse and I immediately gave her Tylenol and comforted her. A bit of info i left out is Wednesday morning, Hadley had more diarrhea, but it was black and black as can be. Giving all this info to the nurse, we directed us to get her to the Children's Hospital ER right away. So, we did and ended up staying there from 9:30 pm till 1:30 am! Hadley had many tests done... catheters, x-rays, etc. The biggest scare was when the nurse said she was sending the ortho surgeons down to evaluate Hadley. They were worried about a "bubble" that was showing up on her x-ray that was thought to be a bubble of air outside her intestines which would require immediate surgery. SURGERY?! WHAT? We were a bit confused and not about to let them take our baby off to surgery without more opinions. So they got Hadley some more x-rays done and 4 doctors and 2 radiologists later, they had realized the bubble of air was the hole in Hadley cast on her back! Crazy, huh? They were ready to do surgery because of a hole in Hadley cast!!!! Scary! So we left with the diagnosis of the "flu" AKA they didn't have a clue! The next day Hadley had a 105.9 fever! We took her into the dr and thankfully they found out she had an ear infection! All this because of an ear infection. Could be! So she's been on antibiotics and is on her way to feeling better!
But it was rather a stressful and crazy wk! Thank God it is just an ear infection!
Anyways, last wk Wed. Andy and I slipped out to do some Christmas shopping and left the girls with my parents. At this point Hadley has been having a mild fever for 1 1/2 days now again we assumed it was teething. Wed. night we got a call from my parents saying Hadley was just horrible and we should come back. We came right back and took her temperature. It was 104.4. Andy called the nurse and I immediately gave her Tylenol and comforted her. A bit of info i left out is Wednesday morning, Hadley had more diarrhea, but it was black and black as can be. Giving all this info to the nurse, we directed us to get her to the Children's Hospital ER right away. So, we did and ended up staying there from 9:30 pm till 1:30 am! Hadley had many tests done... catheters, x-rays, etc. The biggest scare was when the nurse said she was sending the ortho surgeons down to evaluate Hadley. They were worried about a "bubble" that was showing up on her x-ray that was thought to be a bubble of air outside her intestines which would require immediate surgery. SURGERY?! WHAT? We were a bit confused and not about to let them take our baby off to surgery without more opinions. So they got Hadley some more x-rays done and 4 doctors and 2 radiologists later, they had realized the bubble of air was the hole in Hadley cast on her back! Crazy, huh? They were ready to do surgery because of a hole in Hadley cast!!!! Scary! So we left with the diagnosis of the "flu" AKA they didn't have a clue! The next day Hadley had a 105.9 fever! We took her into the dr and thankfully they found out she had an ear infection! All this because of an ear infection. Could be! So she's been on antibiotics and is on her way to feeling better!
But it was rather a stressful and crazy wk! Thank God it is just an ear infection!
Sunday, December 7, 2008
Hadley's 4th Cast Update
Last Friday we had Hadley's follow up for her 4th cast. There were a couple positives, but overall, Id have to say it was the most disappointing apt. We ended up having to take Mia since we couldn't find anybody to watch her, but she was a lot more patient than I thought she'd be. The ride down went good.... we arrived a bit early, which is better than late!
Normally, Hadley usually gets an X-Ray first thing, but this time the nurse said the Dr. didn't order one and he will explain why when he comes in. When he finally came into our room, he explained that they are trying to cut down on X-Rays to lessen the amount of radiation the children are getting. I was happy with that decision because all the X-Rays did worry me a bit... But on another note, it made our trip pointless. So, the Dr. said from now on since this is already Hadley's 4th cast and we are considered experienced(in their opinion), we don't have to come in for a follow up appointment. We'd only be going to Chicago every 1 1/2 - 2 months for a new cast(surgery). That was good news! Less travel!
During the appointment, Andy asked how amazing Hadley's progress is. Is it a miracle? Is there any other child doing this good? Etc.... Dr. Sturm said, we are going in the right direction, but we have to tempt our optimism. He said since Hadley started with such a severe curve, and there is no research on what happens beyond the cast, we shouldn't be too optimistic. In other words, If Hadley is corrected from the cast, she will be the first so we don't know what to expect in the future. We were ok with this, because we know she is in God's control! At the end of the apt, the Dr was trying to pull up Hadley's X-Rays, but was having technical difficulty. He wanted to see her progress and how good it really was. He left the room and came back real quick to let us know when he was able to pull them up. He made a quick comment on her curve only being at 33 degrees out of cast and before I could react, he was gone and we were free to go. I was so confused! Last time Hadley got casted, he told us that her curve was at a phenomenal 23 degrees! He must have been looking at the wrong X-Ray! But I couldn't leave until I heard them say she was at 23 degrees. So we tagged down the nurse and she pulled up Hadley's X-Rays and said the same thing. Hadley is only at a 33 degrees out of cast. We explained to her that we were told Hadley was at 23 degrees! What is going on!? Thats a 10 degree difference!!!! She said Dr. Sturm apparently measured wrong and the radiologist measured 33 degrees and that is what they go off of. I could not believe it! You should not make a mistake that big dealing with curvature of the spine! My heart was pounding, my stomach rotted out, and once we got in the car, I broke down! Thank God for Andy. He stayed calm and kept his optimism! I on the other hand, just fell apart! The thing that bothers me most is that on the scoliosis support group I belong to, there are cases where children have a curve in the 60's and 70's and they usually can correct them down to a 30 degrees. It seems that after they reach 30, they cant get them any lower since there curve started so high. Last time when we were told Hadley was at 23 degrees, I was so thrilled that she had beaten the 30 degree rut all the other kids were facing and we were on our way out of the cast. But now it seems to be she is at the rut point! I thought we would only have a max of 2 or 3 more casts and our baby would be free! It was just shocking and I'm still having a hard time adjusting to the mistake and new numbers!
We know ultimately God can do anything! And if he wants Hadley to be corrected from this casting procedure, He will. I pray that it is his will!!! I don't want our baby to have to face surgery. We have to trust God....
Please continue to pray for us! Pray for Hadley's correction on this next cast can pass the 30 degree rut. And please pray for Andy and I to continue to depend on God with all of this!
Normally, Hadley usually gets an X-Ray first thing, but this time the nurse said the Dr. didn't order one and he will explain why when he comes in. When he finally came into our room, he explained that they are trying to cut down on X-Rays to lessen the amount of radiation the children are getting. I was happy with that decision because all the X-Rays did worry me a bit... But on another note, it made our trip pointless. So, the Dr. said from now on since this is already Hadley's 4th cast and we are considered experienced(in their opinion), we don't have to come in for a follow up appointment. We'd only be going to Chicago every 1 1/2 - 2 months for a new cast(surgery). That was good news! Less travel!
During the appointment, Andy asked how amazing Hadley's progress is. Is it a miracle? Is there any other child doing this good? Etc.... Dr. Sturm said, we are going in the right direction, but we have to tempt our optimism. He said since Hadley started with such a severe curve, and there is no research on what happens beyond the cast, we shouldn't be too optimistic. In other words, If Hadley is corrected from the cast, she will be the first so we don't know what to expect in the future. We were ok with this, because we know she is in God's control! At the end of the apt, the Dr was trying to pull up Hadley's X-Rays, but was having technical difficulty. He wanted to see her progress and how good it really was. He left the room and came back real quick to let us know when he was able to pull them up. He made a quick comment on her curve only being at 33 degrees out of cast and before I could react, he was gone and we were free to go. I was so confused! Last time Hadley got casted, he told us that her curve was at a phenomenal 23 degrees! He must have been looking at the wrong X-Ray! But I couldn't leave until I heard them say she was at 23 degrees. So we tagged down the nurse and she pulled up Hadley's X-Rays and said the same thing. Hadley is only at a 33 degrees out of cast. We explained to her that we were told Hadley was at 23 degrees! What is going on!? Thats a 10 degree difference!!!! She said Dr. Sturm apparently measured wrong and the radiologist measured 33 degrees and that is what they go off of. I could not believe it! You should not make a mistake that big dealing with curvature of the spine! My heart was pounding, my stomach rotted out, and once we got in the car, I broke down! Thank God for Andy. He stayed calm and kept his optimism! I on the other hand, just fell apart! The thing that bothers me most is that on the scoliosis support group I belong to, there are cases where children have a curve in the 60's and 70's and they usually can correct them down to a 30 degrees. It seems that after they reach 30, they cant get them any lower since there curve started so high. Last time when we were told Hadley was at 23 degrees, I was so thrilled that she had beaten the 30 degree rut all the other kids were facing and we were on our way out of the cast. But now it seems to be she is at the rut point! I thought we would only have a max of 2 or 3 more casts and our baby would be free! It was just shocking and I'm still having a hard time adjusting to the mistake and new numbers!
We know ultimately God can do anything! And if he wants Hadley to be corrected from this casting procedure, He will. I pray that it is his will!!! I don't want our baby to have to face surgery. We have to trust God....
Please continue to pray for us! Pray for Hadley's correction on this next cast can pass the 30 degree rut. And please pray for Andy and I to continue to depend on God with all of this!
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